Was there anything that led up to this you’ll probably ask. The answer is no. I had been resting the last two days so my joints weren’t overworked or tired. I hadn’t strained them recently for any reason and I hadn’t even done less than usual. There was nothing unusual that I ate or anything. I’ve thought about it and other than the weather changing kind of rapidly that day there’s no reason for my body to have reacted as it did.

I’ve got to go get my physical done for a new job I’m trying to get today so I certainly hope my body decides to behave better today than it did yesterday!

I don’t know if there’s anything that I can do about either. I might have to see about getting a wrist brace eventually. Anyways, maybe you all have some ideas as to what could help or what might cause the above. I’ve been thinking a lot about changing to another job… but what I have no clue. I guess for now I’ll keep going and going and hope that nothing fails me. lol

Some weeks I’m fine, some weeks I’m in constant pain. I’m managing so far, but I don’t know how long that will last. I wish I could at least get my foot in the door before it becomes unmanagable.

I knew I was double jointed when I was little, but didn’t really know anything about what that meant other than I could dislocate some of my joints at whim and I seemed to be very flexable, however I had problems touching my toes unless I had someone push on my back first so that the muscles in my legs would relax. I always seemed to have problems playing sports. I would try to do one thing and my body seemed like it would do it’s own thing. Everyone said that I was just not coordinated enough, and I took that to be the reason, after all it did seem that I was just rather clumsy overall.

I also had problems with getting warm once I got cold and with cooling down once I got hot. I didn’t think much about it as a kid, because most of the time I was inside our house which my dad kept at around 70 degrees year round, but something that really stood out at me later on down the road. I also had problems with my knees going backwards where I could feel the bones of my leg hit each other. People seemed to not understand my explanation, but I didn’t really understand it either, so I couldn’t blame them. I had eye problems at a young age, but considering that almost everyone in my family needed glasses I wasn’t to surprised.

My grandmother always used to tell me that I should play the piano because I had such long slinder fingers, a pianist’s hands she used to always say. You could also see a lot of the veins in my body through the skin. It was just how I was and no one seemed to think anything wrong with it, so why should I?

So many things that I just disreguarded as nothing or usual when I was younger, and now I’m finding out that they’re not usual at all. The more I learn about Ehlers-Danlos Syndrome and it’s symptoms and how it’s diagnosed the more I’m certain that I had this all along. It’s a genetic disease that exists throught your lifetime, however how badly it affects you is different for each person and often isn’t really appearant until at least your 20′s.

What I keep beating myself up over now is that I should have known about it in my mid teens rather than now. If I would have reported what I was experiencing to the doctor and gotten referrals to specialists I might have known years ago what was going on and could have gotten treatment. Since I was 12 or 13 I have had problems with spells, for lack of a better term, of extreme pain in my joints. Sometimes it was one joint, sometimes a few, sometimes all of them. I remember very specifically one incident when I was 13 in which I spent half the night awake and crying in my bed because it felt like every joint in my body was aching fiercely. I mean a deep throbbing pain that just wouldn’t let up. I finally cried myself to sleep, and the next day felt perfectly fine. I shrugged it off as a one time event or that maybe it was just part of my imagination. I went back to the normal aches and pains that I had been having for years, so I logged it away in memory then tried to forget it. After all, who would believe me if I told the story anyways.

Well, now that I know about this disease and how perfect it fits all my symptoms, I have a problem, no insurance. No way to find out and no way to get treatment. There were plenty more things that lead me to the conclusion that I have this disease than just the above, but listing it all in one post would be very long reading. However, this is why I created this blog, to help me list out all the different things and get my symptoms in order. Maybe one day I’ll be able to get an offical diagnosis.